Our internet Robot found this really great article on the web."...a group of stars converged quietly at the Owenego Inn recently to receive a lesser-known, but personally important honor: the first Friends and Allies Award from the Friedreich’s Ataxia Research Alliance.
The connection that brought acclaimed actress Mary Stuart Masterson, her husband, actor Jeremy Davidson (who appears in the TV series “Army Wives”) and screenwriter and actor Jayce Bartok to Branford is two sisters who are Southern Connecticut State University students and have Friedreich’s ataxia, a progressive neuromuscular disease.
A very pregnant Masterson, who blended with the crowd at the seventh annual Find A Cure dinner at the Owenego Inn, said the Bode girls gave invaluable insight to actress Kristen Stewart, now of “Twilight” fame, in playing the main character, Georgia. Georgia is a high school girl affected with Friedreich’s who decides that given the progression that has her on the verge of needing a wheelchair full time and perhaps a limited life span, she wants to experience a sexual encounter. She does so with a local young man nicknamed “Beagle.”
Masterson filmed the interview she did with the Bode girls, in which she asked them some “very personal” questions and even had them get out of their wheelchairs to demonstrate how they walk. She then sent the interview to Stewart.
“It gave her (Stewart) confidence that she could have an attitude” in playing the character, Masterson said. “It showed her the kind of resolve they have and the ferocity with which they live their lives.”
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